Living with CCSVI

Now that you’ve had your venoplasty CCSVI treatment, you must be an active participant in your recovery. Here are some things you can do right now to maintain the health of your endothelium and your body.

Rest After Treatment
Rest, don’t overexert yourself, for a few days following treatment. Although it might be tempting, do not test out your abilities. It will take a while for your body to adjust to the change in blood flow. During this time symptoms may wax and wane for a few months.

Hydrate
Drink lots of water to maintain optimum blood volume.
Take this quick quiz to determine how much water you need to drink per day.
http://nutrition.about.com/library/blwatercalculator.htm

Healthy Diet and Supplements
Maintain an endothelial healthy diet. We ascribe to the gluten-free philosophy, as well as limiting the intake of processed foods and increasing the intake of dark leafy green vegetables. (Please see suggested reading on diet and supplements on our Supplements and Nutrition pages, which are occasionally updated.)

If you are on blood thinners, speak with your interventional radiologist or primary care physician regarding which supplements you are taking to know if they have an effect on your medication. They may ask you to eliminate intake of the following natural blood thinners:

  • Fish oil
  • Ginger
  • Nattokinase
  • MSM

Please check the Hubbard Foundation Supplements page for occasional updates.

Health Care Management Team

Find a medical specialist whom you trust to provide follow-up care after CCSVI testing and treatment. If you were treated away from home, you might want to contact a nearby IR and ask if he or she would be willing to see you should the need arise. Preferably, you will see someone that is familiar with CCSVI and MS and who has performed CCSVI treatment. In addition, you will want your primary care physician to be aware of your situation and you may even want to provide him or her with research articles regarding CCSVI testing and treatment.

It is our recommendation that you consider meeting with a naturopath, acupuncturist, nutritionist, or other nutritional specialist, to discuss your diet and supplementation.

Stress Management

It has always been the Hubbard Foundation’s philosophy that meditation has a profound effect on the brain. Previous Foundation work was spent studying these effects.

Any form of meditation will be valuable. Find what works for you to increase your sense of well-being and quality of life. http://www.sciencedaily.com/releases/2011/01/110121144007.htm

Physical Therapy

Although CCSVI treatment can help ameliorate some of the symptoms as a result of MS lesions, it may not be able to resolve all of them. Therefore, participating in a physical therapy program, possibly with the inclusion of electric stimulation, may be useful (see the book Minding My Mitochondria by Terry Walls, MD ).

Make sure to let your trainer know that you have a vascular disorder. Take it slow and listen to your body.

Restenosis of the Veins

Some patients experience re-stenosis of the veins, CLICK HERE to learn more.